Spirituality and Social Support as Predictors of Resilience among Elderly Cancer Patients' Informal Caregivers in Punjab, Pakistan

  • Mussarat Hussain
  • Dr. Khalil Ahmad
Keywords: Resilience, Care burden, Informal caregiver, Spirituality, Social support

Abstract

In the context of informal caregiving studies, the use of resilience as a coping mechanism for mitigation of informal care burden is regarded as crucial. More than half of the caregivers of elderly cancer patients experience at least one suspected psychiatric symptom, including depression, anxiety, alcohol abuse/dependence, and post traumatic stress disorder. Besides this, various studies have supported the role of social support and spirituality as predictors of resilience in protecting and maintaining the physical and psychological health of informal caregivers. But, by analyzing previous literature, there is a dearth of empirical research in the Pakistani context which may examine spirituality and social support as predictors of resilience among informal caregivers of elderly cancer patients. To fill this research gap, the current study aimed to analyze spirituality and social support as predictors of resilience among informal caregivers of elderly cancer patients. In this regard, the current study was conducted using a quantitative research design. By using a purposive sampling technique, the data was collected from 200 informal caregivers of elderly cancer patients from the following hospitals: In mol Cancer Hospital, Cancer Care Hospital Lahore, the Oncology ward of Mayo Hospital Lahore, and the Oncology ward of Jinnah Hospital Lahore. An interview schedule was used as a tool of data collection by adopting the following scales: Caregiver’s Resilience Scale, Caregiver’s Spirituality Scale, and MOS Social Support Scale. The study results were analysed using SPSS software, and the descriptive section of the results indicated that the larger proportion of informal caregivers were male, dependent upon their families, aged between 24 and 29, and had only a secondary level of education. Furthermore, when the inferential statistics of the study's correlation and regression analysis tests were used, the results revealed that caregiver spirituality and social support had a significant and positive effect on the caregiver's resilience to care giving burden.

References

Aman, J., Jaffar Abbas, U. L., & Shi, G. (2021). Religious affiliation, daily spirituals, and private religious factors promote marital commitment among married couples: does religiosity help people amid the COVID-19 Crisis? Frontiers in psychology, 12.

Armstrong, M. P., Rushton, G., & Zimmerman, D. L. (1999). Geographically masking health data to preserve confidentiality. Statistics in medicine, 18(5), 497-525.

Bailey, J. S. S. (2020). Self-Compassion Based Stress Management Workshop for Family Caregivers of Individuals with Alzheimer’s Disease (Doctoral dissertation). Pepperdine University, Malibu, CA.

Brugnoli, M. P. (2016). Clinical hypnosis for palliative care in severe chronic diseases: A review and the procedures for relieving physical, psychological and spiritual symptoms. Ann Palliat Med, 5(4), 280-297.

Chappell, N. L., & Reid, R. C. (2002). Burden and well-being among caregivers: Examining the distinction. The Gerontologist, 42(6), 772-780.

Denu, J. M., Stuckey, J. A., Saper, M. A., & Dixon, J. E. (1996). Form and function in protein dephosphorylation. Cell, 87(3), 361-364.

Hiseman, J. P., & Fackrell, R. (2017). Caregiver burden and the nonmotor symptoms of Parkinson's disease. International Review of Neurobiology, 133, 479-497.

Honea, N. J., Brintnall, R., Given, B., Sherwood, P., Colao, D. B., Somers, S. C., & Northouse, L. L. (2008). Putting Evidence Into Practice®: Nursing Assessment and Interventions to Reduce Family Caregiver Strain and Burden. Clinical Journal of Oncology Nursing, 12(3).

Kuşçu, N. K., & Var, A. (2009). Oxidative stress but not endothelial dysfunction exists in non-obese, young group of patients with polycystic ovary syndrome. Acta Obstetricia et Gynecologica Scandinavica, 88(5), 612-617.

LeSeure, P., & Chongkham-Ang, S. (2015). The experience of caregivers living with cancer patients: A systematic review and metasynthesis. Journal of personalized medicine, 5(4), 406-439.

Magid, K. H., Solorzano, N., Manheim, C., Haverhals, L. M., & Levy, C. (2021). Social Support and Stressors among VA Medical Foster Home Caregivers. Journal of Aging & Social Policy, 1-21.

Maqsood, A., Abbas, J., Rehman, G., & Mubeen, R. (2021). The paradigm shift for educational system continuance in the advent of COVID-19 pandemic: Mental health challenges and reflections. Current Research in Behavioral Sciences, 2, 100011.

Matthews, M., Reid, J., McKeaveney, C., & Noble, H. (2022, January). Knowledge Requirements and Unmet Needs of Informal Caregivers of Patients with End-Stage Kidney Disease (ESKD) Receiving Haemodialysis: A Narrative Review. In Healthcare, 10(1), 01-12.

Mayo, M. (2013). Bound and determined: The phenomenology of husbands caring for wives with dementia (Doctoral dissertation). The University of New Mexico, Albuquerque, NM.

Montgomery, R. J., & Kosloski, K. D. (2013). Pathways to a caregiver identity and implications for support services. In Caregiving across the lifespan (pp. 131-156). Springer, New York, NY.

O'Connell, B., & Baker, L. (2004). Managing as carers of stroke survivors: strategies from the field. International Journal of Nursing Practice, 10(3), 121-126.

Ong, H. L., Vaingankar, J. A., Abdin, E., Sambasivam, R., Fauziana, R., Tan, M. E., ... & Subramaniam, M. (2018). Resilience and burden in caregivers of older adults: Moderating and mediating effects of perceived social support. BMC psychiatry, 18(1), 1-9.

Prazeres, F., Passos, L., Simõ es, J. A., Simõ es, P. , Martins, C., & Teixeira, A. (2021). COVID-19-Related fear and anxiety: Spiritual-religious coping in healthcare workers in Portugal. International Journal of Environmental Research and Public Health, 18(1), 220.

Pysklywec, A., Plante, M., Auger, C., Mortenson, W. B., Eales, J., Routhier, F., & Demers, L. (2020). The positive effects of caring for family carers of older adults: A scoping review. International Journal of Care and Caring, 4(3), 349.

Pysklywec, A., Plante, M., Auger, C., Mortenson, W. B., Eales, J., Routhier, F., & Demers, L. (2020). The positive effects of caring for family carers of older adults: A scoping review. International Journal of Care and Caring, 4(3), 349.

Scheinfeld, E., Gangi, K., Nelson, E. C., & Sinardi, C. C. (2021). Please scream inside your heart: Compounded loss and coping during the COVID-19 pandemic. Health Communication, 1-13.

Shehzad, S., et al. (2015). Association of depression and life satisfaction with low resilience among married women of Karachi, Pakistan. Open Journal of Epidemiology 5(4), 251.

Steptoe, A., Dockray, S., & Wardle, J. (2009). Positive affect and psychobiological processes relevant to health. Journal of personality, 77(6), 1747-1776.

Sun, W., Ashtarieh, B., & Zou, P. (2021). The safety challenges of therapeutic self-care and informal caregiving in home care: A qualitative descriptive study. Geriatric Nursing, 42(2), 491-501.

Tuomola, J., Soon, J., Fisher, P., & Yap, P. (2016). Lived experience of caregivers of persons with dementia and the impact on their sense of self: A qualitative study in Singapore. Journal of cross-cultural gerontology, 31(2), 157-172.

Wagner, C. D., Das, L. T., Bigatti, S. M., & Storniolo, A. M. (2011). Characterizing burden, caregiving benefits, and psychological distress of husbands of breast cancer patients during treatment and beyond. Cancer Nursing, 34(4), 21-30.

Yang, J., Zheng, Y. A., Gou, X., Pu, K., Chen, Z., Guo, Q., ... & Zhou, Y. (2020). Prevalence of comorbidities and its effects in patients infected with SARS-CoV-2: A systematic review and meta-analysis. International Journal of Infectious Diseases, 94, 91-95.

Zaczyk, M. (2019). The resilience of social logistics systems-The concept and pilot studies. Journal of Advances in Humanities and Social Sciences, 5(2), 83-96. https://doi.org/10.20474/jahss-5.2.4

Zarezadeh, S. (2021). Enhancing role preparedness for cancer patient caregivers (Doctoral dissertation). The University of Arizona, Tucson, AZ.

Zeeshan, M., et al. (2021). How frequent is burnout among informal caregivers of disabled children? Findings from a cross-sectional study in Karachi, Pakistan. Child Care, Health and Development.

Zhong, Y., Wang, J., & Nicholas, S. (2020). Social support and depressive symptoms among family caregivers of older people with disabilities in four provinces of urban China: The mediating role of caregiver burden. BMC Geriatrics, 20(1), 1-10.
Published
2021-12-22
How to Cite
Mussarat Hussain, & Dr. Khalil Ahmad. (2021). Spirituality and Social Support as Predictors of Resilience among Elderly Cancer Patients’ Informal Caregivers in Punjab, Pakistan. Journal of Management Practices, Humanities and Social Sciences, 5(6), 27-35. https://doi.org/10.33152/jmphss-5.6.4
Section
Articles